Monthly Archives: May 2013

Learning the Importance of Touch

I recently watched a documentary about the decline of ‘Meals on Wheels’ services in the UK. The cameras followed a volunteer to the home of an elderly gentleman. As they joked together, the volunteer put her arm around the gentleman’s … Continue reading

Posted in Hidden Disability, Myalgic Encephalomyelitis (ME) | Tagged , , , , , , , , , , , , | 14 Comments

If I Could Teach Every Doctor Just One Thing…

My doctor cannot fix me. I see in his eyes at every appointment how much he wants to fix me, but he can’t, no matter how hard he tries. I can tell how much it bothers him, I suspect more … Continue reading

Posted in Hidden Disability, Myalgic Encephalomyelitis (ME) | Tagged , , , , , , , , , , | 5 Comments

“Did you rob it off a Dalek?”

Many years ago when I worked in childcare, I had a boss that used a wheelchair. One afternoon, she was speaking to the mother of a six-year old girl when the daughter interrupted. “Is it fun?” the girl asked. “Is what fun?” … Continue reading

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A Reluctant Confession for ME Awareness Week

Some years ago, around the time I was diagnosed with ME, I reconnected with an old school friend. She took to phoning once or twice a year to update me on her news, and when she asked what I was … Continue reading

Posted in Hidden Disability, ME Awareness Week, Myalgic Encephalomyelitis (ME) | Tagged , , , , , , , , | 47 Comments

The Darkness will not be Dark

O LORD, you have searched me and you know me even now I no longer recognise myself. You know when I sit and when I rise and when I am too tired and weak to manage either; you perceive my … Continue reading

Posted in Faith, Hidden Disability, Myalgic Encephalomyelitis (ME), Poetry | Tagged , , , , , , , , , , , , , , , , , | 6 Comments