Monthly Archives: June 2013

ME Isn’t Tiredness

The other night as I switched on the TV I encountered the following exchange on the sitcom Benidorm: “My mother’s got MS.” “Sometimes think I’ve got that.” “You think you have MS?” “Yeah, sometimes. I read about it in a … Continue reading

Posted in Hidden Disability, Myalgic Encephalomyelitis (ME) | Tagged , , , , , , , , , , , , , | 69 Comments

The Importance of Names

The illness I have is known by many names: Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Low Natural Killer Cell Disease and Post Viral Fatigue Syndrome (PVFS) to name but a few. In the UK, the terms ME and CFS … Continue reading

Posted in Hidden Disability, Myalgic Encephalomyelitis (ME) | Tagged , , , , , , , , , , , , , | 27 Comments

Ghost Writer

I am a Ghost. I inhabit the same space as you but I am not really here. I am irrelevant. You are oblivious to my presence; I am less valid than you and therefore easy to dismiss as unimportant. You … Continue reading

Posted in Hidden Disability, Myalgic Encephalomyelitis (ME), Poetry | Tagged , , , , , , , , , , , | 2 Comments

Versatile Blogger Award

A huge thank you to Chrissy who nominated me for a Versatile Blogger Award. It was a particularly unexpected honour as I have only been blogging for a couple of months. Why not check out her blog on living with … Continue reading

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Sad Things can be Beautiful

It is easy to focus on the negative side of chronic illness – the pain, isolation and shattered dreams – and forget that not everything about chronic illness is bad (ninety-nine per cent of it is bad, but even at … Continue reading

Posted in Faith, Hidden Disability, Myalgic Encephalomyelitis (ME) | Tagged , , , , , , , , , , , , , , , , , , , , , | 11 Comments