Neurological Alliance Survey

For those of you with a diagnosis of ME (or any other neurological condition) living in the UK, the Neurological Alliance have launched a nationwide survey to collect information about patient experiences of medical services. (I don’t know about you, but I am particularly heartened to see that ME is included alongside many better funded and more recognised conditions).

It shouldn’t take more than 10 or 20 minutes to complete and gives plenty of space to write about your experiences, good or bad, of medical support and/or the lack of it. The form can be filled out anonymously but you can give contact details if you are willing to be contacted with any follow up questions.

If you are well enough and can spare a few minutes, please follow the link to complete the questionnaire or ask a relative/carer to fill it in for you. Also forward the link to anyone else you know with a neurological condition, particularly other patients with ME. Between us perhaps we can help to raise awareness of the lack of specialist (or often even routine) care for ME patients and ultimately improve the quality of services available on the NHS.

To take the survey click here.

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4 Responses to Neurological Alliance Survey

  1. Pingback: Neurological Alliance Survey | Dead Men Don’t Snore |

  2. After reading so much negative about how things are in the UK regarding treatment of ME patients, this is quite an enlightenment. I believe here, in the US, we are far from that point. 😦

    • Sadly there are no guarantees that any government/health-service policy makers will take note of/act on issues raised in the survey but at least some non-governmental organisations are starting to listen more closely to the experience of people with ME. There are pockets of growing awareness in both the UK and US but both countries still have a long way to go getting accurate ME awareness into the mainstream.

      • Yes, I totally agree; however, any recognition is a positive. We can only hope, that, through our advocacy, we will continue to see some positives. I have a tab at the top of my blog entitled: “M.E. Advocacy.” If you are interested in those blogs. Have a lovely day. 🙂

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