About

Hi, my name is Sarah. Welcome to my blog.

I am a housebound Christian living in the UK. From the age of six I aspired to be a paramedic, but my aspirations (career related or otherwise) were shattered at the age of twenty by the onset of chronic illness. Before illness struck I was a university student, childcare worker, Sunday School teacher and volunteer with a youth theatre company. I played the trumpet and saxophone and enjoyed an active social life with a wide circle of friends. I walked several miles a day, did a variety of arts & crafts, and was actively involved in a local church and its community outreach.

Since becoming housebound and wheelchair dependent, I have had to adapt to a very different way of life and come to terms with a whole new idea of ‘normal’. This blog aims to chronicle that journey and explore some of the issues surrounding faith and disability, while raising awareness of the reality of severe, chronic illness that so often remains hidden behind closed doors.

While some of what I write may be difficult or upsetting I feel that it is important to speak honestly about the difficulties surrounding illness and disability. Many thoughts and experiences common to disabled people are rarely spoken of, leading some to assume they must be the only person to feel a particular way. By writing openly about my own experience and feelings, I hope to let others know that they are not alone in facing these things, and that their thoughts and experiences are equally valid.

Whether you are chronically ill yourself, you care for someone who is, or you stumbled on this blog completely by chance, I would love to hear from you. Let’s make this a safe space where people can share their advice and experiences without fear of judgment. I reserve the right to remove any comment deemed inappropriate or offensive. Inclusion of a comment does not indicate my personal agreement with it or endorsement of its recommendations.

The opinions expressed in blog posts are entirely my own and do not necessarily represent the views of other Christians, or people with disabilities. Names of people and places may be changed to protect identities. I am not a medical professional and any mention of medications, treatments, management strategies or social care are based entirely on my personal experience and should not be construed as medical advice or used as a substitute for proper medical care.

[For an explanation of the title of this blog read my first ever blog post]

25 Responses to About

  1. Ciao and Grazie for stopping by my new Christian blog site – much appreciated!!!

    Dio te benddica, AMEN!!!

  2. This is so beautifully written. God bless you in your endeavors. Your statements on this page alone are so encouraging! God bless you! I prayed for Him to bless you and strengthen you today. 🙂

  3. sarsrose says:

    Can I ask what the illness is that you’re dealing with? x

  4. Thanks for your comment on my site. You’re doing exactly what you set out to do, let other people with disabilities know that they are not alone in the way they think. You have a blog to be proud of and one that will be helping many people.

    Steven

    • Thanks for your kind words, especially as everything you say about my blog is equally as true about yours. If we can create even tiny pockets of the blogosphere where people can ask questions and be open about the realities of disability then its a start.

  5. Hello Sarah – thank you for stopping by my blog and for the “like”. I, too, am a believer in being honest and transparent. Thank you for your courage to share your journey. I just watched (again) the movie Shadowlands. In it one of C.S. Lewis’ students says his Dad taught him “we read to know we are not alone”. Your blog is doing exactly that. Helping others to know they are not alone. Well done you. God bless.

  6. Lauren says:

    Hi,

    I wanted to recommend a very resourceful doctor who specializes in fibromyalgia and CFS–Jacob Teitelbaum, MD–and he knows these conditions as an insider. He contracted CFS while attending medical school and had to drop out for a year to recover. In the ensuing 30 years, he’s dedicated his career to finding effective treatment. He’s written several books on the topic, including his latest, “The Fatigue and Fibromyalgia Solution” (Avery Penguin, August 6). For more info, check out his website, http://www.vitality101.com and to preorder, http://www.vitality101.com/the-fibromyalgia-and-fatigue-solution.

    Best,

    Lauren

    • Thanks for the link. I have heard of Dr Teitelbaum but his approach deals mostly with fatigue whereas my issues are neurological caused by damage to my Central Nervous System. I will leave the link up for anyone with chronic fatigue issues that may be interested though.

  7. Great blog – I like your mix of facts and emotions. Something I am similarly trying to balance in my website. I have an illness that stops everyone in their tracks even though my physical health can confuse them, “but you look so good!” Yeah, nice but I am dying and they know that metastasized ovarian cancer is a death sentence. And that being in constant treatment is horrible. So, I watch my friends who suffer less socially feared or understood illnesses and the lack of support they get – or the questioning if it is even real. I get it. Keep blogging!
    Marcy Westerling
    http://livinglydying.com/

    • Thank you for your words of encouragement.

      I was very much struck by the honesty and humour in your essay on expiration dates. I hope you are able to stay as healthy as possible for as long as possible so you can fill the time you have left with life and laughter.

  8. I love your blog and in appreciation have nominated you for The Liebster Award. Follow this link for more. http://currankentucky.wordpress.com/2013/10/19/emmys-and-oscars-who-needs-em

  9. joynpain2 says:

    May I ask how you came up with the name for your blog?

  10. E. Milo says:

    I have given you a “shout out” on my blog – my version of a Liebster award because I can’t afford to expend the energy writing or answering questions. If you want to pay it forward, please highlight 10 bloggers on your blog. If you’d like to participate even further, you can come up with 10 questions for them to answer and/or answer the questions posed by Jess or Marie (linked on my blog: http://elizabethmilo.com/2013/11/10/award-season/). Mostly, I wanted to say thank you for your wonderful, beautiful, inspiring writing.

    • Thank you so much for your nomination and your kind words. It is hard to know when writing about chronic illness whether you’re striking the right balance between truth and humour or whether you just sound like you’re whinging so it’s always good to get positive feedback.

      • juliasarahelizabeth says:

        Believe me, I love to read your blogs. I never felt like you were whinging. I know you might not feel well enough to accept the award. It took me several months to post about the Family Award. Lol. I just want you to know how very much I appreciate your blog.

  11. Mia says:

    Dear Sarah
    Oh, I am so glad you will be able to spend Christmas downstairs with your family for a while. I know what a great treat this can be!! I wish you a truly Jesus-filled time and a wonderful Christmas.
    Blessings XX
    Mia

  12. Hi Sarah, we have a similar story. I have had M.E. since I was 18 (I am 40 now). I also wanted to be a paramedic and I am also a Christian. Thank you for sharing your story, your struggles and your hope.

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